Rare Disease Day Fundraiser
- 15 hours ago
- 1 min read
In support of Rare Disease Day which was Saturday Feb. 28th, the Tipping family is helping raise money for the Cure KCNH1 Foundation.
If you aren't already aware, their youngest daughter, Briar, has a rare genetic mutation that causes developmental delay, seizures, and severe intellectual disability.
The Cure KCNH1 Foundation funds extremely promising cutting-edge research into gene therapy and there's a possibility that a cure for this disorder could be available as soon as 5-10 years from now with enough funding.
If you are interested in donating and helping to change Briar's life, please visit https://curekcnh1foundation.app.neoncrm.com/campaigns/rare-disease-day-2026.
